California's Parkinson's Disease Registry Pilot Project - Coordination Center and Northern California Ascertainment
Annual rept. 1 Mar 2008-28 Feb 2009
PARKINSONS INST SUNNYVALE CA
Pagination or Media Count:
The primary goal of this project is to conduct a pilot study for the legally mandated population-based Parkinson s disease PD registry in the state of California. This study is one of two linked research programs with the goals of establishing and using California PD registry data. The Parkinson s Institute was funded to serve as the coordinating center for the pilot project including maintaining a secure data enclave, conduct ascertainment work in Santa Clara County and initiate research with the nascent registry. Case ascertainment in three target southern California counties Kern, Tulare and Fresno and exploratory research is being done by the University of California Los Angeles. To date, a total of approximately 1,981 parkinsonism cases have been identified in Santa Clara County via legally mandated reporting sources, including physicians and health care facilities. As case finding work continues, research work will soon be initiated, to investigate possible associations between PD and toxicant exposure using state databases, to assess the value of the registry to stakeholders and to evaluate cost-efficient strategies for registry operations.
- Medicine and Medical Research