Accession Number:

ADA599521

Title:

CINRG: Infrastructure for Clinical Trials in Duchenne Dystrophy

Descriptive Note:

Annual rept. 14 Aug 2012-13 Aug 2013

Corporate Author:

CHILDREN'S RESEARCH INST WASHINGTON DC

Personal Author(s):

Report Date:

2013-09-01

Pagination or Media Count:

60.0

Abstract:

The Cooperative International Neuromuscular Research Group CINRG is a consortium of medical and scientific investigators and centers focused on improving quality of life of neuromuscular disease NMD patients by cooperatively conducting clinical research studies in NMD. The CINRG Coordinating Center CC is an infrastructure to support the network in conducting study protocols, standardizing clinical trial methodology, data collection and quality assurance, and performing data analyses. In this award period, we have continued to make progress on the revamping of the CINRG quantitative measurement system CQMS we have completed sixteen CINRG site visits for hands-on training of site physical therapists as well as monitoring of study procedures and data collection, four new grant applications were submitted, two new protocols were developed, and one manuscript was published. Two additional manuscripts were submitted and several others are in draft form. This infrastructure support yields better overall results in research for improving care in DMD in the largest network of institutions for this disease worldwide.

Subject Categories:

  • Anatomy and Physiology
  • Medicine and Medical Research

Distribution Statement:

APPROVED FOR PUBLIC RELEASE