Defining Early Markers of Neurodevelopmental Disorders in Infants With TSC
Annual rept. 15 Sep 2012-14 Sep 2013
CHILDREN'S HOSPITAL CORP BOSTON MA
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In the second year of funding of the Defining Early Markers of Neurodevelopmental Disorders in Infants with TSC project, administrative set-up of the collaborative project and IRB approvals were obtained. Post IRB approval March 28th, 2012 we have successfully recruited 63 families into the project between the two study sites. More specifically, have collected data from 39 participants with TSC as well as 24 age matched-controls between the two performance sites. To date we have completed more than 220 study visits. In keeping with our specific aims, we have begun to collect the data necessary to outline the neurocognitive and behavioral development of children with TSC. With the data that we have collected and evaluated, we have found the tasks that are part of this project appear to be appropriate to describe the pathways to neurodevelopmental disorders in this population.
- Medicine and Medical Research