Final rept. 29 Dec 2003-28 Jan 2007
HENRY M JACKSON FOUNDATION FOR THE ADVANCEMENT OF MILITARY MEDICINE ROCKVILLE MD
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The goal of this program is to develop and recommend a model of care that enhances the quality of life for DOD children with life-threatening conditions and their families. Our strategy is to maximize current benefits and coordinate medical care with existing community resources and services, tailored to support the familys specified needs and requirements. The first year of work focused on a feasibility study to gather data on the intent, interpretation and implementation of the benefit status of service delivery available resources through the Military Health System, contract providers, community and other government agencies and to conduct an assessment of needs of families. A distinct research protocol was designed to use individual interviews and focus groups to determine family and provider needs. The benefits likely to be used by military families and their children were analyzed. A data assessment collection tool has been designed to capture descriptors regarding community resources. The plan is to web enable the database in order to provide maximum availability and accessibility to the various potential users. An existing education curriculum for providers, Initiative for Pediatric Palliative Care, developed by the Education Development Center, was selected as one that best aligns with the CHI PACCR model.
- Medicine and Medical Research