Accession Number:

ADA465227

Title:

The University of Utah Clinical Genetics Research Program as an NF1 Consortium Site

Descriptive Note:

Annual summary rept. 15 Oct 2005-1 Jan 2007

Corporate Author:

UTAH UNIV SALT LAKE CITY

Report Date:

2007-02-01

Pagination or Media Count:

13.0

Abstract:

The University of Utah Clinical Genetics Research Program CGRP provided the infrastructure for our site to perform clinical trials within the scope of a consortium to treat multiple medical complications of neurofibromatosis type 1. The U of Utah site executed aims of the overall consortium by attending 2 meetings of the consortium November, 2005 and April, 2006, participating in all teleconference calls, and active engagement in the development a The University of Utah Clinical Genetics Research Program CGRP provided the infrastructure for our site to perform clinical trials within the scope of a consortium to treat multiple medical complications of neurofibromatosis type 1. The U of Utah site executed aims of the overall consortium by attending 2 meetings of the consortium November, 2005 and April, 2006, participating in all teleconference calls, and active engagement in the development and submission of a clinical trials application to the Department of Defense in August, 2006. David Viskochil served as vice-chair of the Biology Committee, and he organized a symposium of investigators and clinicians who were part of a MPNST malignant peripheral nerve sheath tumor Consortium and the MPNST Committee of the NF1 Consortium that convened as a satellite meeting of the full NF1 Consortium meeting in Atlanta in April, 2006. A study coordinator has been hired through the CGRP at the U of Utah to assist in the development of material submitted in the clinical trials grant proposal. No data has been collected.

Subject Categories:

  • Medicine and Medical Research

Distribution Statement:

APPROVED FOR PUBLIC RELEASE