Facilitating Breast Cancer Genetic Counseling Through Information, Preparation and Referral: A Pilot Study Using the Cancer Information Service
Final rept. 8 Jun 1998-7 Sep 2002
FOX CHASE CANCER CENTER PHILADELPHIA PA
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Previous research shows that women often lack knowledge regarding the kinds of information required to determine inherited risk as well as on the process and content of risk assessmentgenetic testing. This lack of information leads them to feel unprepared for risk assessmentgenetic testing, if they choose to seek it. This pilot study developed an enhanced intervention to increase a womans knowledge of 1 the factors that determine a genetic predisposition to breastovarian cancer, 2 personal family history and other risk factors, 3 the benefits and drawbacks of genetic testing for breastovarian cancer, 4 the range of surveillance and preventive behaviors available, and 5 the actual process of risk assessmentgenetic testing. Participants were 279 women who contacted the Atlantic Region of the National Cancer Institutes NCI Cancer Information Service CIS requesting information about risk for breastovarian cancer andor information about risk assessment services and genetic testing. Women were randomly assigned to either the standard or enhanced intervention. The study, comparing the standard and enhanced interventions, tested the effectiveness of the CIS in increasing a womans knowledge of inherited breastovarian cancer and the process of risk assessmentgenetic testing as well as her sense of preparation and intention to pursue such services.
- Medicine and Medical Research