Management Options for Women at Risk for Inherited Breast Cancer in a Multi-ethnic Health Plan Population: A Randomized Control Trial
Annual rept. 1 Sep 97-31 Aug 98
KAISER FOUNDATION RESEARCH INST OAKLANDCA
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Education Strategies are needed for women interested in genetic testing for inherited susceptibility to breast cancer, but who are at low to moderate risk based on family history. This project was designed to develop and test appropriate and effective education and counseling measures for women from different ethnic groups at low to moderate risk. The project includes the use of questionnaires, focus groups and a randomized control trial of education strategies to determine the most effective and appropriate measures for use with low-to-moderate risk women from minority populations. Resulting strategies will be usefully applied in the large, ethnically and economically diverse populations of health maintenance organizations from which increasing numbers of women receive health-related information and care. During the second year of the project, the mailed survey of family history and attitudes towards genetic testing has been competed in a sample of African-American, Latina, Asian and white women, and a phone survey of non-responders is ongoing. Focus groups and analysis of questionnaire data are ongoing.
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