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Population-Based Mammography Registry.

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The main objective of this infrastructure project is to expand a population-based mammography registry to include every mammograms performed in a 24 county are of North Carolina, which has a large rural, and black population and link pathology data, mammography diagnostic data, outcome data and quality data to study the patterns or use of mammography, and the patterns of practice of mammography in this distinct geographic region. In the first year we have accomplished much. The application software has been improved with better documentation, reporting and query additions, and allowance for expansion. A module has been instituted that aids practices in meeting FDA MQSA guidelines. We have developed materials in support of the data system being used by our participating practices. An extensive quality control system is now in practice. We have instituted strict rules for guaranteeing confidentiality of all data and we are working with the state and the National Breast Cancer Surveillance Consortium to find the best approach to protect our contributing radiologists, and the patient information from disclosure. We have enrolled 29 practices in 15 counties and and contacted all facilities in the 24 counties. We have linked up with the North Carolina Breast Cancer Study, Breast Cancer SPORE, and the NCCCR are receiving all fast reported breast cancers in the 24 counties and are working with the NC Association of Tumor Registrars to create a mechanism for receiving all benign pathology data. In addition to all this activity, the creation of this infrastructure enabled us to successfully compete for funding by the National Cancer Institute to become part of the National Breast Cancer Consortium. This moves the project from local stature to national stature.

Subject Categories:

  • Medicine and Medical Research
  • Medical Facilities, Equipment and Supplies
  • Cybernetics

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