Ethical Factors Impacting Patients' Decisions to Pursue VCA
[Technical Report, Annual Report]
NORTHWESTERN UNIV CHICAGO ILJohns Hopkins UniversityThe Henry M. Jackson Foundation for the Advancement of Military MedicineWalter Reed National Military Medical Center (WR)/Uniformed Services University
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Hand and upper limb transplantation a form of vascularized composite allotransplantation or VCA is a new treatment option that aims to restore motor and mobility functions and sensation of the handarm. Upper extremity UE transplantation raises multiple ethical issues, particularly, about informed consent. The overall long-term objective of the proposed study is to optimize the informed consent process for people with upper limb amputations. The proposed study aims to 1 Qualitatively assess the decision making and informed consent processes for hand transplantation 2 Develop prototype educational materials video, website, question prompt sheet that provide patient-centered information to enhance understanding and reduce undue influence to pursue hand transplantation, and that are sensitive to different levels of dysfunction, residual limbs, health literacy levels, and different racialethnic groups and 3 Formatively evaluate the educational materials through usability testing on people with upper limb amputations and UE VCA candidates understanding, satisfaction, and usability.
- Medicine and Medical Research
- Sociology and Law