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Development of the Cancer Survivor Profile

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Technical Report

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Uniformed Services University Of The Health Sciences Bethesda United States

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The 5-year survival rate of breast cancer is now at 89 12, amounting to over 2.9 million breast cancer survivors in the United States alone and 6.3 internationally 111 393. The late and long-term effects of cancer and its treatment, coupled with the complexity of navigating the healthcare system in the United States, have resulted in breast cancer survivors with many unmet needs 122 178 196 216 254 261. Currently, there is a lack of clinical assessment tools in the breast cancer population to identify problems and direct survivors to appropriate services. An aim of the doctoral dissertation study was to develop and validate a multi-dimensional measure, the Cancer Survivor Profile CSPro, of symptoms, function, health behaviors, and health survivors needs for breast cancer survivors within the first five years post completion of active cancer treatment. Method The three phase development and validation process of the CSPro included 1 systematic searches of the qualitative and quantitative literature to develop the preliminary measure 2 Participant recruitment of breast cancer survivors who completed active treatment within the past five years 3 Reduction of items, determination of factor structure, and establishment of psychometric properties through principal component analyses, parallel analyses, and tests of validity and reliability. Results This three-step process resulted in a 76-item measure with 18 sub-scales across four problem domains i.e., symptom burden, function, health behaviors, and health services. Construct, convergent, and divergent validity were supported for symptom burden, function, and health service needs. Each of these domains sub-scales were internally consistent and stable over a 14 to 39 day time period. Eliminating the exercise sub-scale from the health behavior domain increased the health behavior domains validity and reliability.

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