Accession Number : ADA302823
Title : Establishment of the Fox Chase Network Breast Cancer Risk Registry.
Descriptive Note : Annual rept. 15 Sep 94-14 Sep 95,
Corporate Author : FOX CHASE CANCER CENTER PHILADELPHIA PA
Personal Author(s) : Daly, Mary
Report Date : Oct 1995
Pagination or Media Count : 261
Abstract : Despite a wealth of research, the complex interaction of the genetic, biologic and environmental factors associated with breast carcinogenesis is poorly understood. Progress in molecular genetics provides us with opportunities to expand our knowledge about modifiable causes of breast cancer, The development of the Fox Chase Network Breast Cancer Risk Registry was proposed to facilitate research in the epidemiologic and genetic predictors of disease and will permit evaluation of the effectiveness of new risk counseling, surveillance and prevention strategies. During Year One of implementation, the following tasks were accomplished: a steering committee was organized to provide guidance and to initiate creation of an advisory panel; a breast cancer risk registry molecular genetics testing facility has been established; a comprehensive data management system was developed, based on the programs supporting the FCCC Family Risk Assessment Program; a series of focus groups, surveys and interviews was used to identify capabilities of each Network Hospital, and a program implementation plan was formulated. A nursing training was conducted to prepare Network nurses to take a role in family risk assessment. Educational materials for recruitment have been developed and disseminated to each institution. Recruitment of families is now underway and will proceed into Year Two.
Descriptors : *ENVIRONMENTS , *GENETICS , *PREVENTIVE MEDICINE , *MAMMARY GLANDS , *BREAST CANCER , *ONCOGENESIS , RISK , STRATEGY , DATA MANAGEMENT , EDUCATION , PREDICTIONS , BIOLOGY , TRAINING , NETWORKS , INTERACTIONS , MATERIALS , MOLECULAR BIOLOGY , HOSPITALS , EPIDEMIOLOGY , NURSES , NURSING , CANCER , COUNSELING
Subject Categories : Medicine and Medical Research
Genetic Engineering and Molecular Biology
Distribution Statement : APPROVED FOR PUBLIC RELEASE